Erin is one of 800
known cases of
Fibrodysplasia
Ossificans
Progressiva.
F.O.P. is one of
the rarest, most
disabling genetic
conditions known
to medi
(more)
Erin is one of 800 known cases of Fibrodysplasia Ossificans Progressiva. F.O.P. is one of the rarest, most disabling genetic conditions known to medicine, it causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another.